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KickStarter Blackthorne health fundraiser

lightbane

Arcane
Joined
Dec 27, 2008
Messages
10,885
Wow, you're having it really rough, buddy. Hope things get better because I can't see them getting worse.
 

Blackthorne

Infamous Quests
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Developer
Joined
Jun 8, 2012
Messages
981
Location
Syracuse NY
Codex 2014 Divinity: Original Sin 2
Thanks, cause I literally just spent the last four days in the hospital due to a massive infection. Had a 105 degree fever. Couldn't walk, hard to stay conscious. Got taken in an Ambulance; told 'em to light it up and speed like my life depended on it. They laughed and turned up the oxygen mask. Spent a day in the ER and three on a floor. Got a unit of blood cause on top of it, I was extremely anemic. All in all, it was kind of like being drunk except 0% fun at anytime, the food sucked, and I didn't wake up next to anyone I would regret. 0/10, do not want to do again. Can't wait to go sleep in my own bed again.
 
Joined
Feb 28, 2011
Messages
4,313
Location
Chicago, IL, Kwa
So sorry to hear that BT. Hospitals truly can be the worst. When my son was born he had to spend a week in the NICU, and my wife and I refer to the hospital as the shittiest and most expensive hotel we’ve ever stayed in. We barely ate because they would bring our meals while we were in the NICU and then come back and clear them ten minutes later even though it was clear they were untouched. If we called to ask for another meal delivery no one would answer. The shower in our room sprayed literally straight out of the bathroom door onto the carpet and (single twin-sized) bed. The bed also just straight up didn’t work and if you tried to use the hydraulics it would just shudder and collapse into a slightly concave shape. And then we finally got home and found their bill for 60k already waiting in our mailbox.
And this is a hospital in one of the wealthiest towns in the US.

So yeah, I have nothing positive to say, but hopefully some commiseration helps a little. Will be thinking positive thoughts towards you and your kids.
 
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Blackthorne

Infamous Quests
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Developer
Joined
Jun 8, 2012
Messages
981
Location
Syracuse NY
Codex 2014 Divinity: Original Sin 2
Yep - they did two biopsies on my newly transplanted kidney last year (in 2021, several months apart. Got the kidney in Nov 2020). It was determined that there was tissue damage to the nephrons of the kidney, and it was not from me or my body's immune system. The kidney must have been damaged before they put it in, and the trauma of the surgery caused it to degrade. It's been functioning at around 25% basically (for stats nerds, I have a GFR of 24 and a Creatinine of 3.01 lately, though last month my creatinine spiked to 4.1 - this may have been because of illness and I was dehydrated.) Still, creatinine levels function like this - every number increase is 100x worse. (2.0 is 100x worse than 1, etc. Normal is about 1.2 for most people). I get tired pretty easily, but for me - the main thing is I'm not on dialysis. But, sadly, like another punch to the dick, I don't know how long this one will last. Maybe it'll hold here for years - sure, I'll be a little more rundown than the average person, but I'll be alive and off dialysis. I can't stress how much a life on dialysis sucks. Having been on it three stretches in my life, if I go back for a fourth, I don't know how long I'll survive. I try not to dwell on it.

I've had a good run, in spite of it all. I've done some pretty cool things, and I've lived with End Stage Renal Disease for almost 20 years now. That's far more than most people have - most people just fucking die from this. Looking back through this thread, I really appreciate all the support I've gotten over the years. I wouldn't have survived as long as I have without this kind of stuff - so thank you. I'll keep working on games till I'm gone, and even then, I'll leave my notes and instructions to someone and I'll fucking haunt them if they don't finish Quest for Infamy 2, I swear to Christ.
 

Blackthorne

Infamous Quests
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Messages
981
Location
Syracuse NY
Codex 2014 Divinity: Original Sin 2
Well - another update from me... Got a meeting next month about going back on dialysis. Chairs are limited now, they have a staffing shortage. Kidney has been running at 15%-20% the past few months, my creatinine is hovering just below 5.0... I'm kind of a mess. It sucks, this last transplant never worked quite right, and now I have to go back on dialysis, and go through the whole damn rigamarole again to get back on the transplant list... which if approved would be my fourth. (The world record is seven, so I'm still off by 3....) but goddammit, I'm sick of all of this. Got a call from someone in the transplant department who saw my name on the "new patient" list because you have to restart all over again, and she said "Make sure you watch all the informational videos...." and I wanted to be like "I've been doing this for 20 years! I helped make the information in these damn videos!". So, now, potentially years of dialysis... another transplant if I'm lucky? Fuck, I'm gonna die on that goddamn machine. Anyway, I'm venting. Just wanna keep people in the loop. Thanks for all the support over the years, lads.
 

Maxie

Wholesome Chungus
Patron
Glory to Ukraine
Joined
Nov 13, 2021
Messages
9,218
Location
Warszawa, PL
Well - another update from me... Got a meeting next month about going back on dialysis. Chairs are limited now, they have a staffing shortage. Kidney has been running at 15%-20% the past few months, my creatinine is hovering just below 5.0... I'm kind of a mess. It sucks, this last transplant never worked quite right, and now I have to go back on dialysis, and go through the whole damn rigamarole again to get back on the transplant list... which if approved would be my fourth. (The world record is seven, so I'm still off by 3....) but goddammit, I'm sick of all of this. Got a call from someone in the transplant department who saw my name on the "new patient" list because you have to restart all over again, and she said "Make sure you watch all the informational videos...." and I wanted to be like "I've been doing this for 20 years! I helped make the information in these damn videos!". So, now, potentially years of dialysis... another transplant if I'm lucky? Fuck, I'm gonna die on that goddamn machine. Anyway, I'm venting. Just wanna keep people in the loop. Thanks for all the support over the years, lads.
don't assume you can kick the bucket before I play the sequel to your game bucko
and you better make development time last at least twenty to thirty years
 

Blackthorne

Infamous Quests
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Joined
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Messages
981
Location
Syracuse NY
Codex 2014 Divinity: Original Sin 2
You'd think they would, but these people doing intake just treat everyone like they're new. It's kind of frustrating; I could do their job with my eyes closed at this point in my life. I'm basically a professional kidney transplant patient.
 

Blackthorne

Infamous Quests
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Developer
Joined
Jun 8, 2012
Messages
981
Location
Syracuse NY
Codex 2014 Divinity: Original Sin 2
Yep. I fucked myself up pretty good almost two Saturdays ago now. My leg gave out on me while I was out, and I fell - bad - into a bunch of metal chairs. Caused a huge contusion on my chest, under my armpit - and I nicked an artery. Was bleeding internally - had to have surgery to drain it and repair the artery. Lost a lot of blood on top of being severly anemic from my failing kidney.... I got six units of blood. Was in the hospital for a week. I'm still recovering; the swelling has mostly gone done, the JP drain is gone, and I have about 13 staples still in. They come out next week. I have an appointment with my nephrologist next week, too, which is probably about when I'm re-starting dialysis. It's kind of a bummer. I'm doing okay today, but I'm not about to win any awards.
 

Maxie

Wholesome Chungus
Patron
Glory to Ukraine
Joined
Nov 13, 2021
Messages
9,218
Location
Warszawa, PL
what the fuck man why did you randomly fall into a bunch of metal chairs
 

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